Meet the new place

Clover Black School, Halifax County 1, by David Hoffman on Flickr, licensed under Creative Commons

I had my first followup appointment with the new team today, in the new place. The good news is, I didn’t need to drive to Baltimore. The bad news is, everything about the new place was aggravating and made no sense to me.

At NYU, there was very much the sense of “one stop shopping.” When I showed up for a checkup, I’d have my bloodwork done in the same office on the same day, and by the time Dr P or a nurse practitioner came in, they had the blood analyzed already. When I needed to schedule additional appointments or scans, the staff in the office knew exactly when I needed to come in and were ready with a selection of dates for me.

Today was nothing like that. From the morning stress of the drive, to the overpriced parking lot, to having to hike four buildings over at the end of my second appointment in order to get to my car, everything seemed designed to frustrate and confound. The only thing remotely relaxing was the echocardiogram, when I got to lie down and have a pleasant chat about gardening with the tech, and hear my heart reassuringly go about its rhythmic swishing.

How I missed my simple subway commute and my well-traveled pathways and plans for lunch after! I even missed the little cubicle where the phlebotomist worked, because under my new regime, I’ll have to go to an external lab for my blood draws before going for checkups. I left the hospital today with a sheaf of orders for bloodwork to be used from now through next June, and the distinct feeling that none of this should be my problem.

Of course, as Roberto Benigni says, “I am lucky to even be here.” I know very well it could be otherwise. As usual I kept my head down through the long wait in the waiting room. As I told J. later, “There were so many cancer people there.” I seem to always be trying to put distance between myself and “them.” Even after all this time…

I never need to look very far for a reality check. I know someone going through much worse right now, in terms of her treatment and side effects and a general feeling that she isn’t supported. My heart goes out to her. I wish her to get to the stage where I am: able to complain about minor inconveniences, able to distance herself from the truly sick, able to sit in an examining room and talk about the distance between her last flare-up and today not in weeks or months, but years.

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One thought on “Meet the new place

  1. Oh boy, do I know how you feel. ♥️♥️♥️

    There are excruciatingly few healthcare systems that can match the “one stop shop” setup of NYU. Over the course of the last two years I’ve been shuttling paper reports and imaging discs (and myself!) between two states, two universities, two cities, and four healthcare systems. None of these systems talk to each other. I’ve spent hundreds in FedEx alone.

    HIPAA may protect patients, but it also balkanized our healthcare to a point that I’m convinced it’s affecting outcomes for patients with rare conditions that require treatment in multiple places. I’ve been glad to see the rise of third party protected database providers that can allow hospital systems to collaborate, but they’re in their infancy. Until I can stop FedEx-ing discs, I know we’re not there yet.

    Hugs, as you navigate the new normal. Like you said, it’s a PITA, but it’s a lot better than the alternative. ♥️

    Like

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